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 A wide range of speakers came together from different international and professional backgrounds, led by patient representatives, to discuss the meaning and application of Patient-Centred Healthcare on a global level. Their thoughts were addressed to a diverse audience of healthcare policymakers, professionals and patient organization representatives, to further understanding and support for the drive to put patients at the centre of healthcare systems.
Meeting Chair, Paul Rompani, Deputy Chief Executive, Multiple Sclerosis International Federation (MSIF), led the meeting which was split into six sessions. “What is Patient-Centred Care? An Introduction to IAPO’s Declaration on Patient-Centred Healthcare.” was followed by presentations of data from Hungary by Zsuzsa Csató, President, Federation of NGO's of people with Chronical Illnesses, and Nigeria by Regina Namata Kamoga, expanding on global evidence on patient perceptions of healthcare. The following session included presentations from patient advocates whose work exemplified the principles of the Declaration.
 During lunch, the delegates continued to discuss the morning presentations and explore opportunities for working together, with enthusiasm.
In the first afternoon session, participants heard from nursing and industry representatives, who examined their own role with reference to the benefits and challenges they face bringing a patient-centred focus to their work. The meeting moved to a practical level as models of patient-centred healthcare in practice were outlined in great detail during the final presentations.
 The audience heard from Durhane Wong-Rieger, Consumer Advocare Network and Wendy Graham, Association of Family Health Teams of Ontario, about their successful partnership as patient advocate and physician that led to innovations in the delivery of healthcare in several Canadian provinces and from Jonathon Tritter, NHS Centre for Involvement, about patient involvement on a national level through a UK National Health Service programme.
The final session brought everybody together to discuss the ideas and presentations that had been heard that day. The response of the delegates was very positive and many people took the opportunity to offer their support to IAPO and committed to raising Patient-Centred Healthcare and the Declaration within their own organizations and continue the drive to push it to the top of the global healthcare agenda. A number of action points were discussed that will be outlined in the meeting report.
 The meeting page also contains:
• The official press release,
• Meeting programme,
• Sign up form to the Declaration.
• Photographs of the event.
In addition, the powerpoint presentations are available to download below. Please feel free to distribute these documents through your networks and help us to raise awareness of the Declaration and its principles. If you have not already signed up to the declaration, please do so by filling out the sign up form and faxing it back to us on +44 207 7721 7596.
We would like to thank all the participants for helping to create a positive and productive meeting and the programme advisory committee for helping put together the agenda and identifying speakers.
Meeting Agenda – Click on the speaker’s name to view their presentation.
Introduction (9.00-9.45)
This session will provide an introduction and outline of the meeting.
9.00 Arrival and registration at the United Nations
9.30 Opening and welcoming remarks
Albert van der Zeijden, Chair, International Alliance of Patients’ Organizations (IAPO)
Dr Siroon Shahinian, Chair, NGO Health Committee
9.45 Introduction and Outline of the Meeting
Chair of Meeting: Paul Rompani, Deputy Chief Executive, Multiple Sclerosis International Federation (MSIF)
Session I – What is Patient-Centred Healthcare? An Introduction to IAPO’s Declaration on Patient-Centred Healthcare (10.00-10.30)
This session will provide an introduction to IAPO’s global vision of patient-centred healthcare and presentation of IAPO’s Declaration on Patient-Centred Healthcare. It will outline the principles of patient-centred healthcare and highlight why these are important to patients.
10.00 What is Patient-Centred Healthcare?
Speakers
1. Jo Harkness, Policy & External Affairs Director, IAPO
2. Sandra Dill, IAPO Board Member; Chair, International Consumer Support for Infertility Patient Leader Network; and Executive Director of ACCESS Australia Infertility Network
10.20 Open discussion, questions and answers
Session II – Patient-Centred Healthcare Around the World: Sharing the global evidence on patient perceptions of healthcare (10.30-11.30)
This session will present the results of a large scale survey which investigated patient group member perceptions of healthcare. It will include a presentation of an overview of the global results. This will be followed by two case studies from two of the countries included in the survey. Speakers from these countries will comment on the survey data for their country and how it relates to their own experiences and work in healthcare.
10.30 What Patients Really Want: Patient Perceptions of Healthcare
Speakers
1. Stephen McMahon, IAPO Board Member and Chairman, Irish Patients Association
2. Zsuzsa Csató, President, Federation of NGO's of people with Chronic Illnesses, Hungary
3. Obatunde Oladapo, Programme Coordinator, Positive Life Association of Nigeria (PLAN)
11.10 Open discussion, questions and answers
11.30 Break
Session III – Patient-Centred Healthcare Principles: Examples (12.00-13.00)
This session will provide more in depth information about some of the principles enshrined within the declaration. Through two case studies, the focus will be put on patient involvement in their own healthcare, patient involvement in health policy, choice, empowerment and information.
12.00 Utilizing Consumer Groups’ Knowledge of Patient and Family-Centred Care Values
Speakers
1. Ryan Sidorchuk, Patient Safety Officer, Winnipeg Regional Health Authority, Canada and WHO Patients for Patient Safety Champion Canada
2. Hussain Jafri, IAPO Board Member; Secretary General of Alzheimer’s Pakistan and WHO Patients for Patient Safety Champion Pakistan
12.30 Towards becoming your own best advocate
Virginia Ladd, President and Executive Director, American Autoimmune Related Diseases Association (AARDA), USA
12.50 Open discussion, questions and answers
13.00-14.30 Lunch in Dining Rooms 5-8
Session IV: Benefits and Challenges of Patient-Centred Healthcare: Other Perspectives (14.30-15.15)
This session will welcome other key stakeholders in health to provide their perspectives on patient-centred healthcare and address benefits and challenges to the concept or its practice.
14.30 Promoting Nursing Capacity Responsive to Patients' Needs
Dr Marilyn De Luca, Executive Director, Jonas Center for Nursing Excellence, USA
14.40 Perspective from the IFPMA
Dr Stefanie Meredith, International Federation of Pharmaceutical Manufacturers and Associations (IFPMA)
15.00 Open discussion, questions and answers
Session V: Models of Patient-Centred Healthcare (15.15-16.15)
This session highlights, through two models, the practical application of patient-centred healthcare. It will demonstrate how a collaborative approach based on putting patient needs first leads to optimal outcomes for both healthcare systems and patients. It will also demonstrate how the development of patient involvement in national policies has developed and the benefits and challenges of this.
15.15 Patient and Public Involvement in Healthcare in Britain: The evolution of policy and the impact on practice
Dr Jonathan Tritter, Chief Executive, The NHS Centre for Involvement, UK
15.35 Collaborating in Primary Care to Deliver Patient-Centered Care
Dr Durhane Wong-Rieger, Chair, Consumer Advocare Network, Canada
Dr Wendy Graham, President and CEO of the Association of Family Health
Teams of Ontario, Canada
15.55 Open discussion, questions and answers
Session VI: Together we can….Identifying next steps (16.15-17.00)
This final session will provide an opportunity to reflect on the day and to identify action areas to promote patient-centred healthcare. The audience will be asked to identify what the most pressing problems are in their countries or experiences and what actions could help address these.
16.15 Chair of session: Myrl Weinberg, IAPO Chair-Elect and President, National Health Council, USA
16.45 Summary and Close
17.00 Meeting Close
This Meeting has been made possible by an unrestricted grant from PhRMA (Pharmaceutical Research and Manufacturers of America).
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The International Alliance of Patients’ Organizations (IAPO) in collaboration with the NGO Health Committee recently held a landmark meeting at the United Nations Headquarters in New York on Patient-Centred Healthcare: Aligning Healthcare Systems with Patients’ Needs. 
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