The workshop aimed to scope out the design of a system that would better meet the needs of patients with pelvic pain in England. The group, chaired by Professor Sir Muir Gray, NHS Chief Knowledge Officer, supported by Right Care, the NIHR MEDAL Study, Prof Khalid Khan, Bart’s and the London School of Medicine and Dentistry, and Judy Birch, Pelvic Pain Support Network, established a working title for their high level aim: “to involve people in the prompt multidisciplinary diagnosis and care for chronic pelvic pain.” Participants, including gynaecologists, patients, pain specialists, radiologists, GPs, nurses, physiotherapists, psychologists, researchers and patient experience professionals, identified objectives towards this overall aim, which included quick and accurate diagnosis, to engage people in the design and management of care and to provide integrated, multidisciplinary care. The group will meet again in May to define the system and prepare a plan to build and pilot it.
The workshop, attended by Caroline Staffell, Membership and Engagement Manager, IAPO, demonstrated the great value of patients, medical professionals and service providers working together to design a system that will work for all. The group considered the patient journey in practical terms, throughout their discussions, and considered what the real needs of patients are to improve the diagnosis, treatment and management of chronic pelvic pain.
Find out more about the Pelvic Pain Support Network