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Media Alert: Seen but not heard? The patient voice in drug regulation today
by IAPO at 4:57PM Monday 18 August 2014 (News)

Monday 18 August 2014
Media alert for immediate release
Spanish/ Portuguese version

Seen but not heard? The patient voice in drug regulation today

‘Increasing the patient voice in drug regulatory authorities’, a meeting hosted by Alianza Latina and the International Alliance of Patients’ Organizations, Saturday 23 August 2014, Rio de Janeiro.

Health experts, patient representatives and groups from across Latin America are coming together to discuss how to achieve universal health coverage – where every person has access to the health services they need – and how drugs regulatory authorities must work with patients to achieve this.

Jo Groves, Chief Executive Officer of the International Alliance of Patients' Organizations, said: "This issue cannot be understated. It is one of the most pressing matters facing patients in Latin America today."

Experts will include Aline Silveira, from the Brazilian Ministry of Health, Jose Luis Castro, from the Pan American Health Organization and World Health Organization, and patient advocate Cesar Garrido, from the National Centre for Hemophilia, Venezuela, along with many other high profile guests.

Patients’ organizations, drug regulatory authorities, academia, industry, policy-makers and healthcare providers will debate how including patients at all stages of regulation can improve safety and access to treatment. The meeting will also focus on national, regional and global activities on biological and biosimilar medicines.

The meeting will be held on Saturday 23 August 2014 from 14.00-18.30 at the Hotel Windsor Florida, Rio de Janeiro. This will be followed by an evening reception at 18.30. The event will be held in English, Spanish and Portuguese. The official invitation can be found here.

Notes to Editors

About Alianza Latina

Alianza Latina is a network established in 2006, with the aim of representing and empowering non-profit organizations that support people living with diseases. Currently, the network is made up of more than 60 organizations, present in 20 countries in Latin America, United States, Portugal and Spain. Their mission is to promote the empowerment, professionalization and cooperation between patient support organizations, aiming to continuously improve the quality of life of people living with diseases.

About IAPO

IAPO is a global alliance of over 240 patients' organizations representing in 66 countries worldwide. IAPO works in a creative and innovative way towards its vision of patient-centred healthcare and has a network that connects an estimated 365,000,000 patients worldwide. They are in official relations with the World Health Organization and have special consultative status with the United Nations Economic and Social Council, collaborating on a number of important healthcare issues including non-communicable diseases (NCDs) and patient safety.

Further Information

Please contact Ian Ford, Communications Officer at IAPO, via email, call +44 20 7250 8282 or refer to the IAPO website for more information.

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