Welcome to our fully searchable Global Directory of Patients' Organizations - the most extensive and reliable listing of its kind.

Search the Global Directory!

Locate patients' organizations according to:

• their location
• the disease area they work in
• the geographical area they represent
• their IAPO membership status

If you have not used our Directory before, then please browse through our Global Directory Help section which gives accessible and clear information about how to search the Directory and get the results you want. 

Please note that we are continually expanding the records we have of patients' organizations worldwide.  Therefore the number of organizations listed will increase periodically, as will our ability to ensure that each organization meets our definition of a patients' organization. We can confirm only that those listed as IAPO members have provided us with evidence that they are patient led, not for profit and are working to achieve patient centered healthcare.

Add your Organization to the Global Directory!
It is easy to ensure that your patients' organization is listed.  Simply email us at membership@patientsorganizations.org and we will send you an application form.

Please note, this is not a membership form.  If you would like to become a member of IAPO and recieve all the benefits of membership - which includes a complete listing on the Directory - please click here.

If your organization is already listed, but you wish to update or add to your details (e.g. a change of address), then email us with the new or additional information.