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| Welcome to the website of the International Alliance
of Patients' Organizations (IAPO).
IAPO is a unique global alliance representing patients of all
nationalities across all disease areas and promoting patient-centred
healthcare around the world.
Our members are patients' organizations working at the international,
regional, national and local levels to represent and support patients,
their families and carers. A patient is a person with any chronic
disease, illness, syndrome, impairment or disability.
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IAPO
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12:49PM Friday 14 November 2008
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Press Release
For immediate release
Kampala, Uganda, 3 November 2008 – The International Alliance of Patients’ Organizations has launched an advocacy toolkit for patient groups to inform and support their activities, advocating for improved patient safety, at a regional meeting of patient groups in Uganda. The toolkit, “Addressing Global Patient Safety Issues: An Advocacy Toolkit for Patients’ Organizations”, is the first multi-issue resource for patient groups, providing the means for patients and patients’ organizations to engage in the provision of healthcare and contribute to a quality and safe healthcare system, and a reduction in harm to patients.
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IAPO
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12:47PM Friday 14 November 2008
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Press Release
For immediate release
Kampala, Uganda, 4 November 2008 – The International Alliance of Patients’ Organizations (IAPO) held a regional workshop in Africa yesterday. Bringing together 25 patient groups from seven African countries: Uganda, Tanzania, Kenya, Nigeria, South Africa, Ghana and Zimbabwe, the workshop represented a landmark in IAPO’s work to promote patient-centred healthcare globally. As a result of the workshop, these groups are developing strategies to overcome the shared challenges they face in accessing healthcare and participating in healthcare decision making. These joint efforts will strengthen the patient voice in Africa.
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IAPO
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12:45PM Friday 14 November 2008
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On 29-30 October 2008, Rod Mitchell, Former IAPO board member and IAPO member representative of the European Federation of Crohn's and Ulcerative Colitis Associations (EFCCA) represented IAPO at the European Commission's Directorate-General Health & Consumers High Level Conference in Brussels entitled "Delivering for Tomorrow's European Consumers".
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IAPO
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12:31PM Friday 14 November 2008
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The DIA Patient Fellowship Programme is currently offering fellowships to 47 patients' representatives to participate in next year's DIA EUROMEETING 2009 in Berlin. It is an excellent opportunity for patients' representatives to learn more about regulatory affairs and interact with people from the industry, the European Medicines Agency, national authorities, and other patients' representatives
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IAPO
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12:27PM Friday 14 November 2008
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The Thrombosis Research Institute (TRI) in collaboration with IAPO and the World Alliance for Patient Safety organized a workshop at the European Health Forum Gastein 2008. This month, Alla Moyla, IAPO representative for the Ukrainian Muscular Dystrophy Association, provides us with some information and feedback on the TRI/IAPO patient safety meeting held in Gastein.
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IAPO
[News]
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12:22PM Friday 14 November 2008
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The Drug Information Association held its first innovation Forum in London recently. In collaboration with the DIA, IAPO was able to offer two free registrations allowing IAPO members the opportunity to attend this event. Jane Meijlink from the International painful Bladder Association provides us with some feedback.
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IAPO
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12:04PM Friday 14 November 2008
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IAPO member, The South African Depression and Anxiety Group, won a silver award at the Commonwealth Awards held in Barbados for their innovative Speaking Books collection. The Speaking Books, are an educational tool for low literacy patients and rural, vulnerable and excluded people living in disadvantaged regions of South Africa. These Books effectively impart critical health care messages to rural citizens, people with low literacy skills, patients too sick to read, and to children.
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IAPO
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11:53AM Friday 14 November 2008
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Eucomed organized a 4-day conference, The MedTech Forum, in Brussels, during October 2008. IAPO CEO, Jo Groves attended the debate on Patient Safety: A global public health issue and a concern for Europe, held at the European Parliament. This event provided a broad perspective on the current debate on patient safety from relevant stakeholder perspectives.
Among the participants were Lee McGill, European Commission, DG SANCO and Helen Hughes, WHO World Alliance Patient Safety, Patient Safety Programme.
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IAPO
[News]
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11:39AM Friday 14 November 2008
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Jo Groves, IAPO CEO, participated in a round table discussion on ‘Putting people centre stage: defining and implementing patient-centred diabetes care’. The 4th International DAWN Summit brought together physicians, nurses, psychologists, patient ambassadors, policy-makers and patient organization representatives to share experiences and best practice in diabetes education and patient support.
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IAPO
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11:22AM Friday 14 November 2008
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Jeremiah Mwangi, IAPO Senior Policy Officer, participated in the Health First Europe Congress in Brussels on 12 November. Jeremiah gave a presentation in a session on the patient perspective on the future of healthcare, focusing on key patient issues.
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