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News is posted here regularly on IAPO's activities and development, our member patients' organizations, and patient-centred healthcare in general.

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IAPO [News] 9:06AM Tuesday 15 April 2014

Update: New Model Needed in Diabetes Care
NOORDWIJK, Netherlands, 8 April 2014 - Participants at the 5th International DAWN™ Summit (Diabetes Attitudes Wishes and Needs) today pledged to work together to make person-centred diabetes care a reality for the 382 million people living with diabetes around the world.

Read the full press release


Press Release: 'It is time to stand up and be counted'
IAPO [News] 11:44AM Monday 31 March 2014

Press Release
For immediate release

Ascot, United Kingdom, 31 March 2014 – This was the call from Stephen Murby Wright, Consumers Health Forum of Australia during a multi-stakeholder panel discussion during the International Alliance of Patients’ Organization’s (IAPO) 6th Global Patients Congress, held in the UK on 29-31 March 2014. This was supported by Dame Sally Davies, Chief Medical Officer (CMO), UK Government, in her keynote address, who emphasised the importance of patient and public involvement: ‘Healthcare research should be carried out by and with members of the public, not just done for or to the public.’

Media Alert: IAPO to define universal health coverage from the perspective of the patient
IAPO [News] 5:28PM Tuesday 25 March 2014

Media Alert
For immediate release

London, United Kingdom, 25 March 2014 – The International Alliance of Patients’ Organizations (IAPO) will be holding their 6th Global Patients Congress and developing a set of patient-centred principles for universal health coverage in Ascot, UK on 29-31 March 2014.

HealthUnlocked and miituu
IAPO [News] 6:07PM Tuesday 04 March 2014

As well as using our current social media tools (particularly Facebook and Twitter) to engage with Congress delegate, IAPO will also be using two new digital resources to gain feedback into the Congress both before and at the event.

During the next month in the run up to the 6th Global Patients Congress to be held on 29 - 31 March 2014, as well as during the event itself, IAPO will be engaging with delegates and members through a new online platform - HealthUnlocked. This is a social network designed specifically for people who care about their health and the health of others, and wish to share important information regarding healthcare.

Innovation in Healthcare
IAPO [News] 5:26PM Tuesday 04 February 2014

Innovation in healthcare can refer to new discoveries, new applications of existing technologies, significant improvements to existing technologies, or new applications that combine existing or new technologies. Health technology refers to drugs, medical devices, diagnostic tests, clinical interventions, and methods for preventing or managing health conditions. In healthcare, valuable innovations can range from novel approaches to the use of professional time, through to the introduction of new surgical techniques, or original communication methods.

UCL Paper: Patients’ Needs, Medicines Innovation and the Global Public’s Interests
On 28 January 2014, University College London (UCL) School of Pharmacy published the report 'Patients’ Needs, Medicines Innovation and the Global Public’s Interests' which was funded by IAPO to provide patient advocates with background information on the issues, challenges and opportunities relevant to innovation and to promote open debate and dialogue. The paper will contribute to IAPO’s ongoing work in the area of access to health and universal health coverage including health financing and the role of innovation. Read the UCL Paper.

Click here for some background information on innovation in healthcare which answers some of the key questions that patients’ organizations may have on the topic of innovation in healthcare technologies.

IAPO received grants from Janssen and the Pharmaceutical Research and Manufacturers’ Association of America (PhRMA) in order to fund this report.

IAPO calls on WHO Member States to develop national action plans for the prevention and management of non-communicable diseases
IAPO [News] 12:40PM Tuesday 21 January 2014

Tuesday 21st January 2014 - 134th Session of the World Health Organization's Executive Board, Geneva.

IAPO delivered an intervention on Agenda Item 7.1: Follow up to the Political Declaration of the High-level Meeting of the General Assembly on the Prevention and Control of Non-communicable Diseases. IAPO called on Member States to develop national action plans to ensure that progress is sustained at the national level, as well as highlighting the importance of patients being at the centre of all NCD strategies.

Read the full intervention below:

Press Release: Patient empowerment is the key to a better healthcare system
IAPO [News] 2:34PM Tuesday 17 December 2013

Press Release
For immediate release

New Delhi, India, 17 December 2013 – “It is time that we came together as one voice” was the call from Dr Ratna Devi, CEO, DakshamA Health & Education Foundation, to patients’ organizations gathered at IAPO’s first multi-stakeholder seminar held in South-East Asia yesterday. The seminar entitled, ‘Meeting patients’ needs in South-East Asia – effective strategies for tackling NCDs and improving patient safety’, explored relevant issues in healthcare systems and patients’ needs from around the region.

IAPO member representative Neda Milevska Kostov shares her experience of the Regional Committee for EURO
IAPO [News] 3:55PM Saturday 28 September 2013

In September, IAPO facilitated the attendance of Neda Milevska Kostov from the Center for Regional Policy Research & Cooperation 'Studiorum' at the WHO Regional Committee for Europe held in Izmir, Turkey on 16-19 September 2013. IAPO was also represented by IAPO Governing Board Member, Jolanta Bilinska.

Here, Neda shares what it was like to attend the Regional Committee:

IAPO attend the 63rd Session of the WHO Regional Committee for Africa
IAPO [News] 12:01AM Thursday 26 September 2013

World Health Organization (WHO) stakeholders from across the African region gathered in Brazzaville, Congo, on 2-6 September 2013, for the 63rd WHO Regional Committee for Africa. IAPO was represented at the Committee by Regina Namata Kamoga, IAPO Governing Board Member, and Christian Locka, IAPO member representative for Action for Humane Hospitals in Cameroon.

Regina and Christian spoke with a number of country, civil society and WHO representatives, highlighting the importance of patient-centred healthcare in current prominent issues, including universal health coverage. This year’s session under the theme "Investing in health for sustainable development" included discussions on healthy ageing; enhancing the role of traditional medicine in health systems; strengthening the capacity for regulation of medical products; universal health coverage in the African region; and health in the post-2015 development agenda.

Press Release: How can patient-centred access to healthcare be realised in Latin America?
IAPO [News] 3:31PM Tuesday 24 September 2013


Press Release
For immediate release

Mexico City, Mexico, 24 September 2013“To achieve patient-centred access to healthcare in Latin America, patients need to be informed, empowered and involved in shaping our healthcare systems” stated Eva Maria Ruiz de Castilla, IAPO Governing Board Member. This echoed the discussions of the participants at the International Alliance of Patients’ Organizations (IAPO) multi-stakeholder seminar ‘Patient-centred access to healthcare in Latin America’ held yesterday.

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